AARP Hearing Center
Caregivers witnessing a loved one suffer from Alzheimer's disease see painful changes every day: a vacant or confused look in their family member's eyes, clothes that don't quite match or that are worn day after day, grooming habits that suddenly take a turn for the worse. It is heartbreaking to watch the person before you change so drastically, both physically and in personality. Seeing this downward spiral occur in her own family inspired Gina Martin to award grants to visual storytellers documenting this devastating disease.
Martin, an account executive at National Geographic, launched The Bob & Diane Fund in June 2016 as a grant-making organization dedicated to promoting awareness of the condition and telling patients' stories through visual mediums. The grants are for $5,000, in recognition of the average amount that caregivers spend in a year to take care of a loved one with Alzheimer's.
The visual aspect brings a better understanding to people who are not exposed to Alzheimer's, because it grabs the heartstrings and makes people more empathetic, Martin tells AARP. "People think Alzheimer's is just memory loss, but it is so much more; it is about personality changes and about where it takes your family and the caregivers. That is where visual storytelling can help."
Martin's mother, Diane, was diagnosed with Alzheimer's in 2006 and died after battling the disease for five years. Diane’s husband, Bob, was her primary caregiver. He was her high school sweetheart, and they were married for nearly 50 years. Bob died just three months after Diane passed.
"One reason I named it the Bob and Diane Fund was to honor my father as well, as a caregiver. I want people to understand the pressure put on them," Martin says. "As much as we were worried about Mom, we worried about Dad more. My father was very committed to taking care of her, and it was a beautiful ending to their love story."