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When comedian Jay Leno recently took a tumble while on tour in Pennsylvania, breaking his wrist and bruising his face, it not only disrupted his dinner plans, but may impact the care he gives his wife, Mavis, who has dementia. For Leno — who took the stage as scheduled — and for other caregivers, the show must go on.
Leno's accident may serve as a crucial reminder: Caregivers get injured and sick, too. They have heart attacks and strokes; they get cancer and dementia; they get sidelined by flu, COVID-19 and broken bones.
Ideally, families have backup plans “B, C, D and E” to deal with those realities, says Crystal Polizzotti, director of the Family Caregiver Support Program at AgeSpan, a private, nonprofit agency in Massachusetts. Often, she says, they don’t.
That means a caregiver’s new diagnosis or developing health problems may focus a family anew or for the first time on building stronger supports, she and other experts say.
Here are some of their recommendations for families in that situation — and families who want to be prepared before a crisis arises.
Assess your village
Caregiving should never be a one-person job, says Ailene Gerhardt, a patient advocate in Brookline, Massachusetts. “Caregiving is extraordinarily stressful and impacts people’s health, even when they are doing just fine,” she says. So it’s essential to ask for help and to divide up tasks. Someone can deal with insurers and hospitals; someone else can buy groceries and pick up prescriptions. Even a family member who lives far away can log onto a loved one’s telemedicine visit, says Lisa Winstel, caregiving program manager at the AARP Foundation and former chief operating officer at the Caregiver Action Network. (It’s legal, she says, if the patient consents.) And helpers can, and often must, come from outside the family, Gerhardt says.
More on Caregiving
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How a Caregiving Grant Allowed My Sister and Me to Take a Much-Needed Vacation
Funds may be available for respite care, adult day care even some home modifications