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Airports Are Starting to Adapt for Travelers With Dementia

Sunflower lanyards, identity cards aim to increase visibility of hidden disabilities

spinner image eric burch left and his wife patricia strauss right flying together
Patricia Strauss, who has Alzheimer’s, and her husband, Eric Burch, flew from Phoenix to Montreal. “We are both in our 50s and appear perfectly able, but it’s clearly not the case,” Burch says.
Eric Burch

Frequent traveler Patricia Strauss, 59, doesn’t look much different from other people in an airport, but little things can create big obstacles for the resident of the Tucson, Arizona, area, who was diagnosed four years ago with Alzheimer’s disease.

Unbeknownst to her, a bathroom at one airport had two exits, which caused confusion and anxiety — for her and her husband, Eric Burch — when she emerged from a different door than the one she entered.

“There’s no doubt that traveling has become challenging for both of us,” Burch says. “We are both in our 50s and appear perfectly able, but it’s clearly not the case.”

According to the Alzheimer’s Association, millions of Americans have some type of dementia, which means difficulty remembering, thinking or making decisions that interferes with daily life. Alzheimer’s is the most common type, affecting an estimated 6.7 million Americans.

Air travel for people with dementia — and their caregivers — isn’t easy. They may become confused or get lost in busy, noisy airports. They may not remember their airline or gate number. Balance or perception problems may increase the risk of falling and make moving walkways or vehicles challenging. 

It can be worse during the holidays, when more people travel. A record number of travelers are expected to travel through airports this holiday season, with AAA predicting 7.5 million people will travel by air from Dec. 23 to Jan. 1. 

Thanks to some new programs at airports — from Fairbanks, Alaska, to New York City to London’s Gatwick Airport — travel for people with dementia is getting a little better.

Over the last few years, more airports have made changes to become more dementia-friendly, adding services such as quiet rooms, wayfinding tools and restrooms with adult changing tables.

While the Americans with Disabilities Act (ADA) doesn’t name dementia, it defines a disability as “a physical or mental impairment that substantially limits major life activities.” Furthermore, the Air Carrier Access Act bars airlines from discriminating against travelers with a disability and requires them to provide travel assistance.

“The industry is starting to understand that beyond a physical disability there are needs for people with hidden disabilities,” says Sara Barsel, founder of the Dementia-Friendly Airports Working Group, an advocacy and lobbying group based in Roseville, Minnesota. “Airports are small municipalities and the cost of real estate is very high. When we are asking them to put in quiet places, adult changing tables or special seating, we’re competing with something that makes money.”

The Phoenix Sky Harbor International Airport in Arizona has been training its frontline staff on what dementia is and what to look out for, as well as raising awareness in the community. In July, the airport hosted a dementia-friendly workshop for the community — the first hosted at an airport — and plans to host another one on Jan. 10. Raising awareness is key, says Monica Moreno, senior director of care and support for the Alzheimer’s Association.

“It’s really important for people to recognize that having Alzheimer’s disease or other dementias doesn’t mean it’s necessary to stop traveling. But it does require families to plan so the individual remains safe and everyone remains comfortable and it’s an enjoyable experience for everyone,” she says. “The airport can be a confusing place to be.”

spinner image left diana pagan and her son john richard pagan in an airport right
John-Richard Pagan, who has Lewy body dementia, often travels with his mother, Diana Pagan, center. John-Richard Pagan wears a sunflower pin designating he made need extra help or time.
Courtesy of John-Richard Pagan

Carry a sunflower or identity card

Going through airport security can be tough for people with dementia.

“It can be challenging when I’m in a security line and have people talking all around me and security people hollering what the next step is,” says John-Richard Pagan, who has Lewy body dementia. “For someone who’s already experiencing a moment of being overwhelmed, it can feel like you’re being yelled at and it’s very confusing to put the pieces together of what’s being asked of you.”

The 57-year-old Virginia resident carries a card stating he has dementia and wears a sunflower pin signifying he may need extra help or more time. They help, he says, and may mean he gets assistance through security or a gate agent ensures he boards early.

In addition to wearing a sunflower or showing a notification card, travelers with dementia or their caregivers can consult with a Transportation Security Administration (TSA) agent or show medical documentation, to relieve any screening concerns. You can download and print a TSA Notification card from the TSA website.

More than 230 airports worldwide, including at least 70 U.S. airports, participate in the Hidden Disabilities Sunflower program for people with an invisible disability and their caregivers to discreetly notify others of their condition. Since London’s Gatwick Airport created the program in 2016, more than 2 million free sunflower items have been distributed worldwide.

spinner image left a cacti lanyard right the sensory room at phoenix sky harbor international airport
The Phoenix airport provides Compassion Cacti lanyards, while the airport’s sensory room provides a quiet space to minimize sensory overload for travelers.
Phoenix Sky Harbor International Airport

Charlotte Douglas International Airport in North Carolina offers sunflower lanyards, silicone bracelets and enamel pins at four locations, says ADA coordinator Liz Erhartic. “We are trying to be proactive and keep up with accessibility trends … and we’re all going to age,” she says. “It’s not only to help people now, but to build the airport we’ll need in the future.”

The Phoenix airport provides travelers with its own version of a sunflower — a Compassion Cacti lanyard. Travelers can pick one up for free at an airport information counter or request one online to pick up at the airport.

Finding better bathrooms

People with dementia may have incontinence issues, Barsel says, so it’s important to have restrooms with adult changing tables so people can change their clothing or dispose of soiled undergarments.

More airports, including those in Charlotte, Phoenix and the New York City area airports, are installing adult changing tables in their family restrooms. Phoenix even has restrooms with showers (look for a shower head on the door) in the post-security area.

Still, “the location and number of family/disabled restrooms is abysmal in many airports,” says Burch, who flies out of Tucson and Phoenix regularly with Strauss. “Locating them can be next to impossible at times.”

Take a break

Noise and too much stimuli can trigger dementia symptoms.

“Finding a place in the airport to step away is important,” Moreno says. “We encourage families to look at a map of the airport and see if there [are] areas to get away from the noise.”

Some airports, including those in Phoenix and Seattle, provide a quiet room to minimize sensory overload for people with dementia and others. The sensory room in Phoenix inside its Terminal 4 chapel has a couch and a row of airplane seats if someone needs time to acclimate to the flying environment, says Misty Cisneros-Contreras, the airport’s guest & employee experience superintendent.

Getting personal assistance

Many airports and airlines offer various kinds of in-person assistance upon request.

To request extra assistance through security, you can complete an online form or call TSA Cares (toll-free 1-855-787-2227) 72 hours before traveling.

You can request wheelchair service when booking your ticket with the airline or contacting the airline at least 24 hours before departure. Arrive early in case there’s a wait.

Some airports have volunteers that help travelers navigate from check-in through security to the gate.

At Phoenix Sky Harbor, travelers must contact the airport at least 24 hours in advance to reserve a volunteer Navigator support guide for free. The airport also has a year-old, free mobile app called Aira in which a real person via video guides travelers to a specific destination, such as a quiet room.

While Burch and Pagan think airports and airlines could do more, they acknowledge these programs are a step in the right direction.

“The experience is getting better,” Pagan says. “It makes a difference.”

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